Melanin Children Matter Inc. is dedicated to serving the needs of children, fostering the healing of families, and advancing societal education, all while raising awareness about childhood rare diseases. Our primary objective is to secure funding for research aimed at developing effective treatments and ultimately finding cures.
One of our key initiatives involves elucidating the ALS registry, thereby facilitating the collection of accurate data and promoting rigorous research in the field. Additionally, we are actively pursuing access to early whole genome sequencing as a means to eradicate misdiagnoses and facilitate timely diagnoses.
I would love to be a guest on your podcast to be able to bring awareness and help promote and reach families in our communities in need.
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